Our Untold Stories podcast has been amplifying patient voices since 2023. These real, eye-opening disscussions have helped build awareness of rare, autoimmune conditions like myasthenia gravis (MG) and chronic inflammatory demyelinating polyneuropathy (CIDP).
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Learn what's being done to increase myasthenia gravis awareness, education, and self-advocacy support
Meet the patients who’ve learned to live with these rare conditions
See how daily life changes for those with an autoimmune condition
Get patient and caregiver advice on navigating hurdles
Gain a deeper understanding of patient transitions, personal growth and community support
Get ready for our upcoming seasons that connect patients through shared experiences, and prove hope, perseverance and progress are possible for people living with rare diseases.
Our host is Dr. Martine Hackett, associate professor in the Master of Public Health and community health programs at Hofstra University. Listen along as she has candid, vulnerable conversations with the patients, friends and family members who are learning how to live with rare, autoimmune conditions like MG and CIDP.
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For people diagnosed with rare, autoimmune conditions like MG or CIDP, life can change in the blink of an eye.
Listen to these patient stories for an inside look at the complexities of diagnosis and the journeys toward wellness:
S06E02 • 28 min • June 2, 2026
Hear how the rare disease community faces unique challenges, and get their practical advice and personal strategies for living full lives.
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S05E05 • 30 min • December 24, 2025
Brandon and Dr. Thawani share how trust, advocacy and shared decision-making make the doctor-patient relationship central to navigating a chronic illness.
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S02E01 • 33 min • December 27, 2023
Through thoughtful insights, Nicole shares a deeper appreciation for resilience and adaptability through unforeseen health challenges.
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