When people first notice generalized myasthenia gravis (MG) symptoms, a rare autoimmune disease isn’t the first thing that comes to mind. Thomas experienced mild MG symptoms for more than a year before he had a concerning episode of droopy eyelids and muscle weakness that landed him in the hospital.

“I tested positive for myasthenia gravis. And I had no idea what that meant. I was symptomatic probably for a year and a half before not knowing that there was anything really wrong.”

Seemingly overnight, Thomas went from being an active tennis player to not being able to cook himself dinner. With the help of his children and his own drive to regain his life, he has found ways to adjust to his new life with this rare disease. 

“The reality is I’m not a different person. I read about MG, how it’s a snowflake disease. I want to see people who have MG as people. I don’t want to be a warrior, and I don’t want to be a snowflake. I want to be Tom because that’s who I am.”

Watch to learn more about Thomas’ journey with myasthenia gravis.

Want to hear from more people living with generalized Myasthenia Gravis about their experiences? Meet Meridith, Jeri, Bryan, SeAndrea, Jessica, Tiffany, and Kim.