Dare to Care Webinar Series

Living with an autoimmune disease: patient voices backed by evidence

Autoimmune diseases affect more than just physical health. They impact every aspect of life, from managing daily tasks like eating or getting dressed to social interactions and career opportunities.

That’s why argenx is proud to present the Dare to Care webinar series, a platform dedicated to bringing together patients and healthcare professionals to share personal stories, explore real-world data, and engage in meaningful discussions, exclusively focused on Myasthenia Gravis (MG) and Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP).

Whether you're living with an autoimmune disease, supporting a loved one, or working in healthcare, this webinar series provides essential strategies for a better life with an autoimmune disease.

The webinar is in English, and you can select subtitles in English, French, Spanish, German, Italian, Dutch, Romanian, and Polish via the menu on the video player.

Episode 1: Balancing Energy, Work & Productivity with Autoimmune Diseases

In this session, patients share how they manage their energy and career while living with Myasthenia Gravis or Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP)

Meet the speakers

  • Matthieu Lusignan – Member of the MG patient group of the AFM Téléthon and MG Expert Patient.
  • Jean-Philippe Plançon – President of EPODIN, the European Patient Organization for Dysimmune and Inflammatory Neuropathies, and CIDP patient.
  • Sarah Dewilde – Doctor in Public Health.
  • Caroline Collard – Patient Care Consultant.

Explore and share our resources: download infographics and the full webinar report:

➢ Download the MG & CIDP infographic: When your body betrays you, work becomes a battlefield → download PDF "Dare to Care - Episode 1 - Infographic MG & CIDP combined"
➢ Download the Myasthenia Gravis infographic: Balancing the unseen: Myasthenia Gravis, energy, and the access to work → download PDF "Dare to Care - Episode 1 - Infographic MG"
➢ Download the CIDP infographic: CIDP in action: Navigating productivity with limited energy → download PDF "Dare to Care - Episode 1 - Infographic CIDP"
➢ Download the Dare to Care Webinar Report – Episode 1 → download PDF "Dare to Care - Episode 1 - Webinar Report"

Choose your preferred language (see how to select subtitles below) and watch the replay:

To watch the replay with subtitles in your language, open the video settings, select ‘CC/Subtitles’, choose your language, and customise the display if needed.

Episode 2: Reclaiming quality of life with neuro-autoimmune diseases

From adapting your hobbies to planning your holidays, hear from people with MG and CIDP and the experts supporting them. This episode is all about rediscovering joy and managing your condition on your own terms.

Meet the speakers

  • Gabi Faust - CIDP Patient and President of the German Association for CIDP, Guillain-Barré-Syndrome and variants (Deutsche GBS CIDP Selbsthilfe).
  • Alisa Matei - MG Patient and Member of the Patients Group of the Romanian Association for MG (Asociatia Nationala Miastenia Gravis Romania).
  • Sarah Dewilde – Doctor in Public Health.
  • Caroline Collard – Patient Care Consultant.

Access the essentials from Episode 2: MG & CIDP infographics and the complete Dare to Care webinar report:

➢ Download the Myasthenia Gravis infographic: Redefining independence, energy & relationships in daily life → download PDF "Dare to Care - Episode 2 - Infographic MG"
➢ Download the CIDP infographic: Rethinking independence, energy, emotions & relationships with chronic neuro-autoimmune disease → download PDF "Dare to Care - Episode 2 - Infographic CIDP"
➢ Download the Dare to Care Webinar Report – Episode 2 → download PDF "Dare to Care - Episode 2 - Webinar Report"

Choose your preferred language (see how to select subtitles below) and watch the replay:

To watch the replay with subtitles in your language, open the video settings, select ‘CC/Subtitles’, choose your language, and customise the display if needed.

Episode 3: Navigating relationships with MG & CIDP

This session shines a light on the human side of living with MG and CIDP. Patients and experts will explore how to open up about a diagnosis, how love and family relationships evolve, and how caregivers play an important (yet often invisible) role. Through real voices and expert perspectives, we’ll discover ways to keep connections strong in the face of chronic illness.

Meet the speakers

  • Naomi Wynen - MG Patient.
  • Charlotte Hesterman - CIDP Patient.
  • Sarah Dewilde – Doctor in Public Health.
  • Caroline Collard – Patient Care Consultant.

Choose your preferred language (see how to select subtitles below) and watch the replay:

To watch the replay with subtitles in your language, open the video settings, select ‘CC/Subtitles’, choose your language, and customise the display if needed.

Want to go even deeper into the stories behind the webinars?

Discover Dare to Care | The Podcast, a series of short, 15-minute conversations with patients and experts featured in the Dare to Care webinar series. In each episode, we take a closer look at one topic discussed during the webinars, exploring personal experiences, practical challenges and lessons learned in a more intimate, one-to-one format. Whether you're looking for patient perspectives, expert insights or simply a better understanding of life with Myasthenia Gravis (MG) and Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP), the podcast offers a quick and accessible way to continue the conversation.

Don’t miss future episodes! Sign up to receive updates straight to your inbox and join the live sessions to ask your questions directly in the chat.

EU-UNB-25-00029 – Date of preparation: May 2025